Can anyone diagnose me?
My name is Terisa and I am in desperate need of help! I am 19 years old and have been very ill for almost a year now. I have seen several doctors (including specialists), had hundreds of tests, and even more medications and treatments to no avail. I am getting pretty desperate because the nature of my illness is one that restricts me to home, limits me to few activities, and most importantly, keeps me in constant pain. I am hoping that somewhere out there is my House. I am looking for a doctor looking for a challenge or someone that has struggled with illness that may have answers! I am willing to take any suggestions so if anyone has any idea of what I could have, please feel free to put in your two cents! And please don’t hold back because of how serious a diagnoses you have. I’ve been told I have all sorts of terrible diseases so I’m not shy about that. The following are my symptoms.
*Wide spread, chronic, severe pain that is worst in the knees, hips, and back. The pain is made worse by movement, sitting, standing, exercise, walking, bending over, crouching down, and on bad days, laying down. The pain is helped by narcotic pain killers and heat but never goes away completely. A normal day my pain is between a 5 and 7 on the pain scale. With drugs, a 3 to 6 (The pain started March 2nd, 2009. At the time I was diagnosed with a bulging disc but I have since been undiagnosed. However the pain mimics that of a bulging disc if that helps.)
*Chronic, debilitating fatigue. This is more recent than the pain.
*Insomnia (I have always slept well before this.)
*Hair loss
*Cold Intolerance
*Clotting disorder (This one is bizarre. I have never had a problem until recently when I started bleeding into a bruise (blood started to pool under the skin at bruise site) and had a nose bleed for 2 hours. Tests show that I have a problem with my clotting time and my Factor 7 is high.)
*Severe abdominal pain (Severe abdominal spasms that bring me to my knees. I have been diagnosed with IBS but I include this as a symptom just in case.)
*Joint stiffness and weakness.
*Numbness, tingling, and weakness in left leg and lower back (this is why they thought I had a bulging disc.)
*Occasional twitching and shaking
*Extreme changes in appetite (sometimes I can’t eat and sometimes I can’t stop.)
*Nausea
*Headaches
*Stomach Ulcer (this might be stress related or some bizarre manifestation or what I have, I don;t know yet.)
*Changes in menstrual cycle even though I am on birth control and have been for 2 years.
*Irritability, anxiety, and depression.
Now here is the really bizarre part. I have been tested for and do not have: Hypothyroidism, Leukemia, Lupus, Rheumatoid Arthritis, A factor 7 disease, pregnancy, or anemia. This is where I stump everyone. I test negative for everything! So this is where I need help. If anyone has an idea of 1) What else I could possible have or 2) how it is possible that I could have the above mentioned things and test negative.
Well thanks for your time and help. I really appreciate anything anyone can offer me!
Thanks again.
Tagged with: anyone • diagnose
Filed under: Pregnancy Depression Treatment
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This is my 100% serious answer, if you haven’t already tried. Marijuanna, im not kidding. BTw, you look just like my ex girlfrend, its creepy, but not a bad thing
I’ll just throw some ideas out there
-Severe abdominal pain, diahrea and hair loss can be from adrenal insufficiency.
-Irritability, extreme increases in hunger and insomia and body wide pain can be from increase in cortisol levels like in cushings syndrome which doesn’t really match but I thought I would mention it.
-depression and insomia is understandable if you are in pain and can’t get a deep night sleep. I’m in chronic pain a sleep study showed I woke up 9 times every hour without knowing it. Hypothyroid also causes insominia but you were checked for that.
-Discomfort in the stomach when bending over can be from a hiatal hernia.
Pain in the joints and body, numbness and tingling can be from Oedema (swelling) which may not be obvious. Some girls get Idiopathic Cyclic Edema.
Low vitamin C can cause fatigue, extreme joint pain and bleeding. Low vitamin D can cause body pain and fatigue.
Cold intolerance can be from not eating enough calories, cold agglutnin disease, infection, etc. I would also look up Hughes Syndrome which is closely related to Lupus (although it doesn’t fit with your nose bleeds). You can also have low iron body stores without being anemic.
I would look up Reiters Snydrome if you have joint pain and were sexually active. I would get off the birth control to see if the joint pain is a drug reaction.
I gave you one link for a rare blood cancer that causes bleeding
I hope I don’t send you on a wild goose chase since I have no medical background. It’s best to remember back when the first symptoms started and what was it. Don’t get side tracked with new symptoms that are a result of medication. I hope you find a answer without having to dig too much.
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